What will I be asked to do?
If you are eligible and
agree to participate in the study, we will ask you to complete the following
Read and sign an informed consent document
A legal document
explaining what you can expect from us and what we expect from you if you agree
to participate in this study.
2. Complete a 10-minute survey
It asks about information
on your gender, age and other demographics, general health, diet, physical
activity, smoking and tobacco use, and digital data use.
Donate your digital data
Including social media
like Facebook, Instagram, and/or Twitter, digital data like Google history and/
or step data from a step tracking application/device.
4. Share your health information
We will be asking your
permission for us to extract information from your electronic health record and
information from your health care insurance provider.
5. Receive a $50 gift card
Mailed to your home
- Your participation could
last between 15-60 minutes or up to one week or more for study enrollment,
and your data will be stored during the duration of the study.
- The study
will take place over a period of 5 years, but
your participation will end after you complete all the
- There is no direct benefit to your participation.
However, your participation could help us understand how digital data and
health record information can be used to predict heart health and health care
- You have the right to drop out of the research study
at any time during your participation. There is no penalty
or loss of benefits to which you are otherwise entitled if
you decide to do so.
- Withdrawal will not interfere with your
future care at Penn Medicine.
In order to be eligible for this study you
· Be a Penn Medicine patient
· Have been diagnosed with one of the following Cardiovascular related
diagnoses (Myocardial Infarction, Stroke, or Coronary Heart Disease) in the past 2 years and no prior history of the above diagnoses OR have no medical history of the above listed Cardiovascular
· Use and have an account of any or all of the
following digital data sources: social media data (Facebook,
Instagram, and/or Twitter), Google
search history, or step tracking data
· Willing to share your digital data, health insurance
information, and electronic health record information with healthcare
· If sharing data from a social media account, you have to have
posted at least 10 times in the past year on that account