Digital Data and Heart Health | Using Digital Data to Predict Coronary Heart Disease

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Study Overview

What is the purpose of this study?
 
This research study is exploring about how digital data (ie. social media, online searches, and step tracking data) are associated with Coronary Heart Disease (CHD) and related risk factors in order to develop a more precise CHD risk predictor tool. We are seeking patients ages 40-74 with and without a Cardiovascular related diagnosis of interest who receive care in the University of Pennsylvania Health System (UPHS), also known as Penn Medicine.
 

Study Description

What will I be asked to do? 
If you are eligible and agree to participate in the study, we will ask you to complete the following enrollment steps:
 
1.     Read and sign an informed consent document
·        A legal document explaining what you can expect from us and what we expect from you if you agree to participate in this study.
2.      Complete a 10-minute survey 
·        It asks about information on your gender, age and other demographics, general health, diet, physical activity, smoking and tobacco use, and digital data use.  
3.     Donate your digital data
·        Including social media like Facebook, Instagram, and/or Twitter, digital data like Google history and/ or step data from a step tracking application/device.
4.     Share your health information
·        We will be asking your permission for us to extract information from your electronic health record and information from your health care insurance provider.
5.      Receive a $50 gift card
·        Mailed to your home address   
 
  • Your participation could last between 15-60 minutes or up to one week or more for study enrollment, and your data will be stored during the duration of the study.
  •  The study will take place over a period of 5 years, but your participation will end after you complete all the enrollment steps.
  • There is no direct benefit to your participation. However, your participation could help us understand how digital data and health record information can be used to predict heart health and health care use.
  • You have the right to drop out of the research study at any time during your participation. There is no penalty or loss of benefits to which you are otherwise entitled if you decide to do so.
  • Withdrawal will not interfere with your future care at Penn Medicine.  

In order to be eligible for this study you must: 
·       Be a Penn Medicine patient
·       Have been diagnosed with one of the following Cardiovascular related diagnoses (Myocardial Infarction, Stroke, or Coronary Heart Disease) in the past 2 years and no prior history of the above diagnoses OR have no medical history of the above listed Cardiovascular related diagnoses
·       Use and have an account of any or all of the following digital data sources: social media data (Facebook, Instagram, and/or Twitter), Google search history, or step tracking data 
·       Willing to share your digital data, health insurance information, and electronic health record information with healthcare researchers
·       If sharing data from a social media account, you have to have posted at least 10 times in the past year on that account 
 

  • Study Identifier: 833699

Recruitment Status

Open

Check to see if you pre-qualify for the study.

Are you between the ages of 40 and 74 years old?

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If you need assistance finding a non-cancer study or if you have any questions, please email psom-ocr@pobox.upenn.edu